I am so behind in updating and so much has happened!
She is in a crib!
That means she is able to maintain her own body temperature.
They
have been weaning Hazel's PEEP (the amount of pressure used to keep
her lungs inflated) on the CPAP (oxygen machine). They said once she
was at a 5 and stable she would be moved to the High Flow machine. It
was at 8 on Wednesday, 7 Thursday, 6 Friday, and then they decided to
switch her over to the High Flow machine early. That is HUGE! We're
hoping she does great. (The picture on the left is her new nasal
cannula. The picture on the right is what they used when she was on
CPAP. She hated it!) If she is able to stay stable I should be able to
start doing non-nutritive feeds. That's where we practice nursing.
Hopefully soon!
She looks so different to me.
The pacifier looks giant on her tiny face. Ha.
Lots of snuggle time this week.
She
loves to hold my finger (or anyone's for that matter). If you try to
let go she will tighten her grip. She has long fingers like her mom. :)
This
is the first time I've seen her with nothing on her face. I wish her
eyes had been open. She's beautiful. I love you, little Hazel.
One
of the holes in her heart has healed (the PDA). The PFO still needs to
close. It may or may not have closed by the time she goes home. Her
lungs looked good in the last ECHO they did to check her Pulmonary
Hypertension. I forgot to mention that she had Pulmonary Hypertension,
but it's looking better.
I'm
recovering pretty well. I have come a long way in the last week. I'm
able to take less pain meds, my mood has been balancing out, and I've
been walking more. I'm still in a lot of pain sometimes, but I'm
grateful that I can feel such a big difference and that I am finally
recovering. I still can't drive myself to the hospital because of the
pain meds I'm taking. A huge thanks to Ryan's family and my Mom and Ryan
for all of the driving they've done for me so I can see Hazel each day.
Thank you to all of you that have been checking up on me. When I've
been feeling down it's nice to read messages from friends and family who
care.
Lots of love,
Ella
I love the picture with nothing on her face. Sweet, pretty girl! I also love the snuggling pictures. You look so happy :)
ReplyDelete